Andreasoz's PFS story and hopeful recovery

[andreasoz]

Hello everyone!

I have suffered with pfs for 8 years, since I was 19. My parents put me on it when I was 17 due to my hair was thinning. I am 27 years old today.

You might think 17 is early to have mpb? I was treated with hormones to stop my height, when I was 12-13. I am not sure if it was growth hormone or regular testosterone or some other hormone. I was extremley tall for my age and I could have been between 2.15-2.30 meters tall according to the doctors as a grown adult. So I was treated with hormones for a year.

Either way, it stopped my height at 2 meter so I am still pretty tall. I suffered no side effects from this treatment besides hair thinning when I was 17.

Before propecia my libido was extremely high, raging erections and I had a pretty big penis. Like others who suffers from pfs it seems that we all have unusually high libido before finasteride.

The propecia treatment lasted between age 17-19. At first I didn't feel much, the hair grew thicker and I was happy. Ít was mostly my parents however that was worried about hair thinning. The doctor who prescribed finasteride didn't tell us about permanent side effects, and that all side effects would subside after stopping treatment.

Anyway, when I was 18 I begun losing interest in girls and life in general and my dick appeared to be shrinking and I was feeling depressed.


I went to different doctors and no one thought it could be due to propecia. I trusted them and continued to take propecia for 6-7 months more and then quit cold turkey because of similar stories I had read online.

The last 1.5 years of taking propecia I h had sudden "stings" of incredible pain in the groin area that lasted a microsecond. That, low libido and bad erections caused me to quit. I wasn't eating very healthy during my high school years and didn't exercise much but lifted some weights and jogged from time to time.

At first when I quit I felt better, but then a month after quitting the pain in the groin area got worse and appeared more often, and a month after that I developed chronic prostatitis, the bullshit condition that no urologist knows much about or how to treat. They tell me to "live with it" and so on. I have suffered chronic prostatitis(non-stop pain) for 8 years.

To make a long story short I have suffered for 8 years since quitting, tried to study and work but I couldn't due to the pain in the pelvis/prostate. I was depressed and hoped I would recover naturally with lifting and keeping a good diet, which I failed to do mostly. I gained some muscle but overate(due to my situation/pain and life) but the prostate pain was/is killing and made me suicidal. I lived at my parents house for some years after trying different diets and treatments, seeing different doctors with no success.

I asked my doctor to check my hormones, about 2 years after I quit, and it came out:

P-SHBG 17 nmol/L Ref.omr 10-80

P-Tesosteron 7.3 nmol/L Ref.omr 8.0-30

P-Lutropin (LH) 5.1 IE/L Ref.omr 1.7-8.6

P-Progesteron 3.1 nmol/L Ref.omr 0.7-4.3

P-Testo/SHBG kvot 0.43 Ref.omr 0.3-1.1


I was pretty skinny when the test was done, now I am fat about 30 kg overweight. My natual testo went up to 11 some years after this test. I tried a PCT with HCG clomid and nolvadex that made me better during the PCT, but after it I returned to baseline.

So I was prescribed testogel from a "specalist endo" which I took but it didn't help much. It maybe helped my mood abit.

I was tested alot by this endo, who checked alot of values and hormones which I don't have access to now but I had low cortisol on some of the tests, and when I complained that I had developed "air hunger" and a need to gasp for air multiple times a day, he did a test which showed low cortisol, and then a month later another one which showed normal range so he didn't do anything about that.

I am not seeing him anymore becuase he only tests me year after year, and thinks the testogel "cured" me and that my other issues are not related/mental.

And btw I have not been put on sick leave yet, but I am close to now after all this time according to my doctor. But I my goal is to become healthy ofc, to be on sick leave for life is a stigma and not something I want. My parents are currently supporting me.

I ordered some HC after reading that "air hunger" was a classic low cortisol symptom. I took 10 mg and it was gone.
After this I found JQD on solvepfs/propeciahelp and ordered som HC of the internet, and took 10 mg a day which helped me alot with mood, completly cured air hunger and gave me some mental clarity.

I decided to go on his protocol and I am now injecting 75 mg-125mg testo e e5d and 10-20 mg of HC ed and 1 grain of NatureThroid ed, which I feel is helping a bit. I have done this for 6-7 months. I remember when I was treated to stop my height and the hormones made me go crazy horny and aggressive and so on. Now it's not like that after testo inject, so I am sure propecia messed with something.

I also have alot of anxiety nowadays both because of the illness but also due to my living situation and doctors who doesn't know anything, been sent around for years in state health care with no result.

Anyway, I know I sound like a bitch but this is how it's been. I was young when all of this started and my parents didn't know anything and the doctors didn't know anything and I didn't now anything about how to overcome this. I have tried a whole lot of supplements and the only thing that I feel is helping a little bit is creatine and trib. I also take cialis once a week to get blood flowing down there. I have tried to have sex over the years but it has always been shit and my libido is so low so I haven't cared much.

I also take benzos once in a while which helps with the prostate pain and the same with cannabis. Cannabis helps with the mood and pain but I do not like to take any drugs to often.

I lifted weights 3 times a week for years and it made me feel better mentally/built some muscle but the prostate pain got worse so I stopped.

I didn't mean for this to be a whine fest but this is how it's been. My english isn't great and combined with brain fog it can get a little messy.

Anyhow, I tried water fasting for a week and it helped with clarity and pain while fasting, but after it returned to baseline.

So my symptoms are:
low testo
low cortisol(got worse after some years off propecia)
Brain fog
Shrinkage
prostate and penis pain.
White/see through pubic and arm pit hair(had this since 6 months after quitting)
low libido
anxiety
suicidal thoughts
depression
ED

"Not feeling there/always feeling far away" I don't feel present at all anymore. Everything is far away.

My current protocol:
Testo E 75-125 mg e5d
HC 10-20 mg ed
Naturethroid 1 grain ed
Proviron 25 mg ed (been on for 2 weeks)
Creatine ED
Trib ED
Multi-vitamin ED

Diet:
I have cleaned up my diet and is currently restrecting my calories and keeping carbs low. Not full paleo, but eating organic and clean food. When my pain is intolerable it's extremly difficult to control my diet. But maybe I just have do it? Any tips?

So my question to you all is, what should I do? Should I quit the testo train and cycle cdnuts herbs and do the fasts and training? And how can I limit my prostate pain?

Also I went on a juice fast for 3 days following Joe's fasting program, with "mean green" recipies and others, but my stomach went to shit so I had to stop. Any tips there?

What is CDnuts and other recoverers opinion on what to do next?

[andreasoz]

I have severe pelvic pain that I got soon after quitting propecia 8 years ago and still have it. Nothing seem to help it and it gets even Møre painful after masturbation and such.

Any tips on how to relieve my pelvic pain? In my case I think it's key in my recovery.

[xxLUK]

Treating Male Pelvic Pain and Fear of Treating Male Pelvic Pain Blog About Pelvic Pain (http://www.blogaboutpelvicpain.com/?p=1203)

MFR Self-Treatment for the Pelvic Floor á la the John F. Barnes Myofascial Release Approach™ - YouTube (https://www.youtube.com/watch?v=GjWjzisNH4E)

Sounds like you may have Pelvic Floor Dysfunction, I think I am suffering from the same thing also, which is causing my premature ejaculation/peyronies. I reckon you should go see a physical therapist who specializes in the pelvic floor. That exercise in the youtube video definitely feels like it's loosening up some tension when I do it.

[andreasoz]

I have had PFS for 10 years now, my parents started me on propecia when I was 17.

I have severe pelvic pain that I got soon after quitting propecia and still have it. Nothing seem to help it and it gets even more painful after ejaculation and sexual activity.

Any tips on how to relieve my pelvic pain? In my case I think it's key in my recovery.

I tried juice fasting for 3 days but the pain got worse? I have also tried water fasting for 7 days and the pain got really bad. I've also tried nofap but the pain builds up around day 5 and I can go 14 days of nofap, with more pain but mental temporary improvements until I ejaculate(sry tmi)

I have also tried yoga and acupuncture with little success. My dick is much smaller now than it was when I was 17 and smaller erect as well. The pelvic pain and that my penis is constantly retracting like it's cold and small erections + fat makes me avoid women. I can still build muscle and am very tall(2 meters), so even when I am this fat I get some female attention. I don't look as fat as I am.

I am severely overweight/obese but it's strange when I overeat the pain temporarily goes away. Lyrica can remove the pain for a while but it's also a shitty drug. Weed does very little. I have tried prostate massage many times, which helps while doing it but nothing permanent. Same with hot baths, it helps when I am bathing but when I get up the pain comes back.

I have also low t and tried trt but I didn't feel much even at high dosage. I have done a PCT tapering with nolvadex at the end and my test is back a little higher than when I was young after I had crashed, but still very low.

I also tried the paleo diet for 2-3 months but I didn't feel any difference, maybe because of the stored fat. I lost some fat thou but gained it back after the diet.

Maybe TMI, but do you have any suggestions for me? Should I just try the protocol again? The pain is the main problem for me, it's keeping me unemployed and I can't study or focus with this much pain. Can I take a drug such as Lyrica during fasting or is that stupid/dangerous?

Lifting weights seem to make the pelvic pain worse. I feel like I have some kind of nerve damage but no doctor(mostly idiots in Sweden) don't take that seriously.

Sry for sounding negative, tried to be informative.

[andreasoz]

Treating Male Pelvic Pain and Fear of Treating Male Pelvic Pain Blog About Pelvic Pain (http://www.blogaboutpelvicpain.com/?p=1203)

MFR Self-Treatment for the Pelvic Floor á la the John F. Barnes Myofascial Release Approach™ - YouTube (https://www.youtube.com/watch?v=GjWjzisNH4E)

Sounds like you may have Pelvic Floor Dysfunction, I think I am suffering from the same thing also, which is causing my premature ejaculation/peyronies. I reckon you should go see a physical therapist who specializes in the pelvic floor. That exercise in the youtube video definitely feels like it's loosening up some tension when I do it.

Ty for the tips, I did try and are doing these kind of exercises, but I feel like most things that lowers the pain it's just temporarily. When I stop doing the exercise I immediately go back to baseline(severe pelvis pain)

And after 8 years or something I cannot figure out this pelvic pain thing. Sometimes rowing(rowing machine) makes it better, other times worse. Same with sex and lifting weights and such. If I overeat the pain subsides temporarily.

I have other symptoms but the pelvic pain is so severe that it becomes so difficult doing anything and with brain fog even harder. I have tried before "just do it soldier" but when the pain get's to a certain level I do anything and take anything to lower the pain. Maybe sounds negative, but that's how I feel.

High doses of Lyrica reduces the pain to almost nothing, but I need 600mg+ and I feel drunk and not myself while on it. But maybe it's better to take Lyrica and really be able to change things?

[tom]

I had the same thing, but I don't think you have to focus that much on the pelvic.

I use to get drunk because the next morning after a little hangover I would feel pre-PFS again,
I know it sounds fucked up but think it has something to do with allopregnanolone levels raised by alcohol consumption.

one of the main things that I remember was that my dick wasn't cold and my ass wasn't tight.
it's like a cascade effect, our problem isn't exactly just at the pelvic floor, we need to fix a lot more than that.

anyways, coffe enemas help. the excersices you find on youtube help. but you'll have to do the full thing.

[andreasoz]

- - - Updated - - -


I had the same thing, but I don't think you have to focus that much on the pelvic.

I use to get drunk because the next morning after a little hangover I would feel pre-PFS again,
I know it sounds fucked up but think it has something to do with allopregnanolone levels raised by alcohol consumption.

one of the main things that I remember was that my dick wasn't cold and my ass wasn't tight.
it's like a cascade effect, our problem isn't exactly just at the pelvic floor, we need to fix a lot more than that.

anyways, coffe enemas help. the excersices you find on youtube help. but you'll have to do the full thing.

Yeah ty for your answer. I feel more inner power now even though I have pain and have had pfs for so long. It doesn't matter now. But what do you think about being on Lyrica for pain? I know if I start the protocol my pain will raise and I cannot control myself when it raises above a certain point.

I think I will try to do as many positive things I can, and use Lyrica as well, and hope that Lyrica won't hinder improvement.

coffee enemas I will definitely try, not common here in Sweden but I googled a bit and it's possible to do here as well lol.

I'm currently tapering benzos aswell, which did help the pain a bit. All these shitty drugs, and benzos are not good for a PFSer, or anyone for that matter. I was lost for many years, I did too little in the beginning. I was in denial and got severe depression(gone now). I was very immature when I got this condition. If I get my health back, it would be the greatest gift for my parents, and that is very motivating.

Also I have a strong inner drive to live. I want the greatest life possible. If that means coffee up the ass, I will do it. What do you think about using Lyrica?

And the drunk thing I have read many times. My brain fog sometimes cleared when I was drunk, but I don't like drinking anymore. I only like red wine now lol. Also I tried amphetamines(yeah great idea!) and it made me able to focus and happy but after the effects the pelvic pain increased for like 4-5 days. I will not do these kind of things anymore, I'm just being honest. I have also tried MDMA over the years, which also made the pain worse after it's effects. But during both effects the pain was almost gone, so I know it's possible for it to go away.

[K8668B]

Same exact thing with me as far as propecia.. a parent took me to a doctor a month before i turned 17, and i was already drugged up on other shit-ass pharmaceuticals due to "adhd" and "learning disabilities" as a kid. I was too drugged up on the pharms, and too young/naive/brainwashed to even speak up for myself at that age. Im pissed about that parent doing this to me, but getting mad about it wont do me any good. Before propecia, i had a ridiculously high sex drive, and was born with good genetics. The doctor told me a side effect of propecia was ed/loss of libido, but the chance was only like 0.1%. pfft. i almost said no, but a parent talked my naive ass into it. I shouldve ran out of the doctors office that day. I may have had to walk an extra 20 miles home, but it would have been worth it, (heheh)

Now i will be 31 years old tomorrow.

I found CDs protocol back in february, and ive really just finally started doing it about 2 weeks ago. I dont worry about the "decade of my life lost" anymore, because this protocol makes alot of sense to me, and i know its the right thing, and i believe in it. The sooner you jump on it yourself, the sooner you will be better. PFS wont go away on its on. It took me years to get here myself. Ive already seen some progress as well too. I know I will be healed!

And welcome to the forum!

this should help- http://www.totalmaleoptimization.com

[andreasoz]

Same exact thing with me as far as propecia.. a parent took me to a doctor a month before i turned 17, and i was already drugged up on other shit-ass pharmaceuticals due to "adhd" and "learning disabilities" as a kid. I was too drugged up on the pharms, and too young/naive/brainwashed to even speak up for myself at that age. Im pissed about that parent doing this to me, but getting mad about it wont do me any good. Before propecia, i had a ridiculously high sex drive, and was born with good genetics. The doctor told me a side effect of propecia was ed/loss of libido, but the chance was only like 0.1%. pfft. i almost said no, but a parent talked my naive ass into it. I shouldve ran out of the doctors office that day. I may have had to walk an extra 20 miles home, but it would have been worth it, (heheh)

Now i will be 31 years old tomorrow.

I found CDs protocol back in february, and ive really just finally started doing it about 2 weeks ago. I dont worry about the "decade of my life lost" anymore, because this protocol makes alot of sense to me, and i know its the right thing, and i believe in it. The sooner you jump on it yourself, the sooner you will be better. PFS wont go away on its on. It took me years to get here myself. Ive already seen some progress as well too. I know I will be healed!

And welcome to the forum!

this should help- http://www.totalmaleoptimization.com

Thank you!

I feel for you, and both of us. We have gone down a similar path it seems. I'm lowering my valium dose every 14th day, I am now on 10 mg Valium a day and I lower it by 5 mg every time so I will soon be off all fkn drugs. I would have quit sooner but I got withdrawal and that shook me up. I have never felt any form of addiction to any drug and learned that once you get benzo withdrawal you got to go off slowly. Shit is dangerous. I don't even feel the effects anymore but I take it slow anyway.

I am starting to follow the protocol today even if I am still on the shitcunt drugs. I am Swedish so I had to copy all the herbs that is needed of that menu, and order them from Swedish shops, took some time before I could copy paste the list provided. Great site overall. If CDnuts protocol works he is sent from above. I think however he should just list the herbs in plain text on the site somewhere so it's easy to copy for us foreigners.

I know his protocol will help, just cleaning up my diet, lifting my spirits and begin to train will help me. As I said I am overweight(obese), I don't even know if I should use the herbs before I have lost a lot of weight. Well, they can't hurt.

Herbs list here: http://www.swolesource.com/forum/supplements/2912-cds-natural-testosterone-boosting-regimen.html#post49166

[Cdsnuts]

I am starting to follow the protocol today even if I am still on the shitcunt drugs. I am Swedish so I had to copy all the herbs that is needed of that menu, and order them from Swedish shops, took some time before I could copy paste the list provided. Great site overall. If CDnuts protocol works he is sent from above. I think however he should just list the herbs in plain text on the site somewhere so it's easy to copy for us foreigners.




Lol....easier for foreigners.....lol

[andreasoz]

Lol....easier for foreigners.....lol

:)