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SS7
06-22-2019, 11:43 AM
LINK HERE. (https://forum.propeciahelp.com/t/post-drug-syndrome-survey-faq-survey-now-live-please-participate/34482)

Hello all. I'm sure there's very divided opinions on propeciahelp here, and I might add with very good reason. I wouldn't blame anybody not wanting to visit that site at all, and I'm sure a lot of us have had experience of at least the 'tone' of the place.

In the spirit of OUR forum though, I want to frame it by saying fellow sufferers might be helped in future by what they're trying to do here, with this. And if you can spare the time to do it and fill in their survey you might just be an important contributor to fully understanding the underlying science behind things. Noguarantees of course, and no certainty, but you justmight.

At the very least, they're trying something over there, and they have faith in that direction, however long and convoluted that direction might be. Even CD himself persisted with them against the negativity for longer than anyone could be expected to, because he wanted to give support and hope. So, if you do feel you can please do sign up even just to do that, and you'll at least help them cross this hurdle and extendsome help to whatis, after all, our common cause.

I hope this is ok to post. Thanks friends.

RickTheRuler
06-22-2019, 01:34 PM
Nah man.


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basementdweller
06-22-2019, 02:36 PM
LINK HERE. (https://forum.propeciahelp.com/t/post-drug-syndrome-survey-faq-survey-now-live-please-participate/34482)

Hello all. I'm sure there's very divided opinions on propeciahelp here, and I might add with very good reason. I wouldn't blame anybody not wanting to visit that site at all, and I'm sure a lot of us have had experience of at least the 'tone' of the place.

In the spirit of OUR forum though, I want to frame it by saying fellow sufferers might be helped in future by what they're trying to do here, with this. And if you can spare the time to do it and fill in their survey you might just be an important contributor to fully understanding the underlying science behind things. Noguarantees of course, and no certainty, but you justmight.

At the very least, they're trying something over there, and they have faith in that direction, however long and convoluted that direction might be. Even CD himself persisted with them against the negativity for longer than anyone could be expected to, because he wanted to give support and hope. So, if you do feel you can please do sign up even just to do that, and you'll at least help them cross this hurdle and extendsome help to whatis, after all, our common cause.

I hope this is ok to post. Thanks friends.

I did it, hopefully something constructive comes out of it

SS7
06-22-2019, 02:54 PM
Nah man.


No problem at all. Btw your progress is going great, makes awesome reading.


I did it, hopefully something constructive comes out of it

Yes, let's hope so. Might shift them along a bit.

RickTheRuler
06-22-2019, 06:01 PM
It’s all good bro,

I have such a negative view about that site ingrained in my brain, & it’s hard for me to even see it positively or want to help like yourself cause it affected me so negatively emotionally that I just don’t wanna deal with them, I just wanna fully heal on my own, cause I’m only responsible for me & my loved ones.

I haven’t been there since I crashed, my last memory there was hell...I clicked the link you just posted & i got some weird feelings reading everything.. & it’s been a year.. I think there’s some inner trauma going on with me about that site. Like some ptsd type thing. I see what people write & just the general tone of the site & my heart still drops to my asshole..

I just remember it being a place of hopelessness,confusion, & toxicity like no other. Part of it was my fragile state as well obviously.

It’s good that you want to help though SS, I respect it.
I’m working on one video about recovery that I’ll put up soon & that’ll be my contribution.. A click away, i don’t have CD’s patience...I’m sure I’ll receive propeciahelp criticism, but I could care less.


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Maxout777
06-23-2019, 08:39 AM
I know what you're saying, that site traumatized me as well. For some reason the times when I was at my worst I instinctively went back... like the only thing I could relate to was misery and hopelessness. This just makes things worse obviously.

Funny thing, I got the "is CD a fraud" thread shut down when I criticized the site, I guess some bitch reported me. The admin gave me this sanctimonious lecture and then closed the thread. Now that I think about it, I kind of regret doing a survey for that clown

What is sad is know deep down the guy means well. Unfortunately, with something like this - it’s much easier to believe the end result lies outside of your own hands, than bear the responsibility of not doing anything about it.

I have no doubt that the gents are suffering, and some far worse than I ever did. However, doing nothing at all to even attempt getting better is not an acceptable or respectable solution. Even more so, discrediting and damaging the reputation of former members that came back to report success is even shittier. That’s why you never see anyone hang around there, even the guys that recovered before CD. Of course, the need to is no longer there, but even if they did have some spare time and want to help, it’s not worth the attacks, accusations, and high school-level drama that comes with it.

Cdsnuts
06-25-2019, 11:27 AM
I'm torn on this.

I'm all for helping people, no doubt, but the way they go about it over there, and of course the personal attacks on me have really soured me from wanting anything to do with them.

That being said, what is the survey actually going to accomplish? Do you think because of this survey they are going to come up with some magic pill to cure PFS?

We are accomplishing more over at this tiny little site then they ever have. So really, I guess I don't see the point.

For the guys who do feel like contributing to this survey would be helpful, does that mean that they are not fully on board with the TMO protocol? I feel that if the belief over here was 100%, then this survey would be pointless.

I would like to hear all of your thoughts on this.....

DKnighten
06-25-2019, 06:37 PM
I see it as a common nightmare we've all went through. Intensity and stages here are varied obviously, but in my humble opinion, sacrificing an hour of your time to provide data for others going through the same nightmare doesn't seem like too much of a loss to me. Even if the remedy for this remains the same: to cover all bases and get out of the way while the body does what it is designed to do, providing data could possibly help in some way..

Just my thoughts.

basementdweller
06-25-2019, 07:02 PM
I don't know what the motive behind the survey is, but I like the idea of thousands? of potential testimonies against the pieces of shit who are knowingly poisoning people.

DKnighten
06-25-2019, 08:38 PM
I don't know what the motive behind the survey is, but I like the idea of thousands? of potential testimonies against the pieces of shit who are knowingly poisoning people.

I feel you on that 100%. Regardless of whether the cure or treatment is found next year or a decade from now, the manufacturer of this drug has to face punishment at some point. I believe compiling an FDA report and filling out the survey, while certainly won't make a difference in symptoms, does more good than harm.

LetsGo
06-26-2019, 11:26 PM
Filling out a survey on PH is utterly pointless. That site is extremely toxic, to the point where many of its posters have killed themselves.

It’s not going to help find a pill-based cure. The research that’s currently being done is still in the phase of trying to spell out a disease mechanism - what exactly is going wrong and in what ways. A cure through the FDA approved drug pathway would take decades and the funding is not there to do this. It will not happen.

By filling out their survey, you’re lending legitimacy to propeciahelp. IMO it is bad, and the only reason to visit the site would be to encourage people to leave it.

SS7
06-27-2019, 04:18 AM
I'm torn on this.

I'm all for helping people, no doubt, but the way they go about it over there, and of course the personal attacks on me have really soured me from wanting anything to do with them.


Thanks for replying here CD. I had many reservations about posting this link up, but it's fundamentally that approach. We're here because you help people, not to crawl too far up your ass about it but that's what it is. I'm surprised (and yet not) that you are torn. Couldn't blame you especially for not wanting to go back.



That being said, what is the survey actually going to accomplish? Do you think because of this survey they are going to come up with some magic pill to cure PFS?

We are accomplishing more over at this tiny little site then they ever have. So really, I guess I don't see the point.

For the guys who do feel like contributing to this survey would be helpful, does that mean that they are not fully on board with the TMO protocol? I feel that if the belief over here was 100%, then this survey would be pointless.

I would like to hear all of your thoughts on this.....

Probably VERY eventually they'll come up with a treatment or cure, I don't know how soon any of that will move, but it is movement from a site that has previously (to my mind) just stagnated. We don't stagnate here, we "do" and they need more of that. The site itself, for the most part, stands in the way of what we do here and rubbishes us sometimes/often. But we can contribute a little where they're being pro-active, in their own way, if we feel we're in a place to. Don't get caught up in that site if you don't feel you can.

Anyway, the moderator's blurb follows:



It promises to generate vital data on post-drug disorders that will inform the scientific community and draw attention to this important public health issue. In addition to profiling the symptomatic condition of patients over time, it will gather further data including the impact on quality of life and patient’s satisfaction with clinical care. Contributing patients will be able to view reports generated from submitted data in the future.

As such, your time spent participating is valuable and deeply appreciated, whether you are an active participant or you are no longer visiting the forum. The more affected patients that complete the survey, the more powerful the data will be.

No need to visit and do it if you feel you can't. It's not about doubting the protocol or the road you're on (I mean ffs just re-read the recoveries thread here, nothing like that there) but it is about helping fellow sufferers on their own road, whether we agree with that road or not. I'm doing it because I don't care about their climate of despair, it can't touch me, I know what I'm doing here is the right thing and I don't mind extending them the olive branch once in a while - in the end though we'll all be fixed before much comes of this, but they've put their faith on something we can support just a little bit.

Just some of my thoughts on it.

basementdweller
06-27-2019, 07:34 AM
There will be no magic cure ever. I want people to stop taking these drugs and I want to see the peddlers held accountable. That's it. It shouldn't be some kind of political issue, People spend hours posting about their blood work and how many boners they had this week but won't fill out a survey? You don't even have to go on the forum to do it .

Cdsnuts
06-27-2019, 07:58 AM
Thanks for replying here CD. I had many reservations about posting this link up, but it's fundamentally that approach. We're here because you help people, not to crawl too far up your ass about it but that's what it is. I'm surprised (and yet not) that you are torn. Couldn't blame you especially for not wanting to go back.



Probably VERY eventually they'll come up with a treatment or cure, I don't know how soon any of that will move, but it is movement from a site that has previously (to my mind) just stagnated. We don't stagnate here, we "do" and they need more of that. The site itself, for the most part, stands in the way of what we do here and rubbishes us sometimes/often. But we can contribute a little where they're being pro-active, in their own way, if we feel we're in a place to. Don't get caught up in that site if you don't feel you can.

Anyway, the moderator's blurb follows:



No need to visit and do it if you feel you can't. It's not about doubting the protocol or the road you're on (I mean ffs just re-read the recoveries thread here, nothing like that there) but it is about helping fellow sufferers on their own road, whether we agree with that road or not. I'm doing it because I don't care about their climate of despair, it can't touch me, I know what I'm doing here is the right thing and I don't mind extending them the olive branch once in a while - in the end though we'll all be fixed before much comes of this, but they've put their faith on something we can support just a little bit.

Just some of my thoughts on it.

I guess to me it's pointless because we already know how to fix it. What more needs to be done? At this point it's just beating a dead horse.

Bankai9000
06-27-2019, 10:17 AM
Even if they have a breakthrough this weekend and would magically be able to sell it by the end of the month.
I'm done taking "safe" pharmaceuticals unless I lay dying in a hospital.

Maxout777
06-27-2019, 10:55 AM
In all honesty, these similar approaches have been done long before my time, in CD’s days with PFS, and during my time, and now after - none have yielded any results.

The massive corruption in the FDA will never let Merck be accountable. I see no issue with doing the survey at all, but don’t expect a ton of action from it. Again, it means well and I’m glad they’re doing something in the forward direction - but again, it’s still relying on a broken system to fix you and or fix the initial problem. Worse odds than Vegas.

Cdsnuts
06-28-2019, 11:53 AM
I would like to see the other point of view on this, as with all things, but in my mind, the guys that take the time to fill out the survey maybe have doubts about this protocol.

To me it's not necessary because we already know how to fix it. Why bother doing the survey?

Am I missing something?

Zerolibido
11-25-2023, 12:19 AM
I would like to see the other point of view on this, as with all things, but in my mind, the guys that take the time to fill out the survey maybe have doubts about this protocol.

To me it's not necessary because we already know how to fix it. Why bother doing the survey?

Am I missing something?


Yes we're missing that you're a dumb fucking turd who had bad but recoverable pfs

Your ducking corpus cavernosum disinfectant
Yiubdidnt get accelerated ageing

I had worse pfs than you and recovered to a similar level without confirming buckshot

All I needed was hcg but you trafficking dumb cunt told everyone to fast and take.herbs

Stupid yank ducking cunt

Shame on Allen Worthington as well Swiss spastic took him ten years t I execute the study he mentioned it to me in 2009

- - - Updated - - -


Nah man.

Fuck up gimo
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Mildest pfs case ever

Fucking gimp

- - - Updated - - -


Nah man.

Fuck up gimo
Sent from my iPhone using Tapatalk

Mildest pfs case ever

Fucking gimp

Zerolibido
11-25-2023, 12:32 AM
In all honesty, these similar approaches have been done long before my time, in CD’s days with PFS, and during my time, and now after - none have yielded any results.

The massive corruption in the FDA will never let Merck be accountable. I see no issue with doing the survey at all, but don’t expect a ton of action from it. Again, it means well and I’m glad they’re doing something in the forward direction - but again, it’s still relying on a broken system to fix you and or fix the initial problem. Worse odds than Vegas.

Not a bad post

Allen Worthington is a useless Swiss spastic cunt who thought of the study in 2009 and took a decade to enact it allowing era of stagnation Fuck in useless Swiss spastic cunt

- - - Updated - - -

Good posts from the OP too

Allen Worthington let Propecia Help did

Swiss spastic cunt

- - - Updated - - -


Even if they have a breakthrough this weekend and would magically be able to sell it by the end of the month.
I'm done taking "safe" pharmaceuticals unless I lay dying in a hospital.

Yeah your a gimp but you're right

I can't believe I swallowed quetipine

What a fucking idiot man

- - - Updated - - -


Even if they have a breakthrough this weekend and would magically be able to sell it by the end of the month.
I'm done taking "safe" pharmaceuticals unless I lay dying in a hospital.

That's on me not debuts

Fuckingbimbecike man

I can't ducking believe it

Zerolibido
11-25-2023, 01:18 AM
I'm torn on this.

I'm all for helping people, no doubt, but the way they go about it over there, and of course the personal attacks on me have really soured me from wanting anything to do with them.

That being said, what is the survey actually going to accomplish? Do you think because of this survey they are going to come up with some magic pill to cure PFS?

We are accomplishing more over at this tiny little site then they ever have. So really, I guess I don't see the point.

For the guys who do feel like contributing to this survey would be helpful, does that mean that they are not fully on board with the TMO protocol? I feel that if the belief over here was 100%, then this survey would be pointless.

I would like to hear all of your thoughts on this.....
Accomplishing more here lol

It's alkaline cases here if course you at all

You Buckinghamshire cunt Dunbar been recovered on fucking hcg you cunt you ducking Swiss spastic consciousness

- - - Updated - - -


I'm torn on this.

I'm all for helping people, no doubt, but the way they go about it over there, and of course the personal attacks on me have really soured me from wanting anything to do with them.

That being said, what is the survey actually going to accomplish? Do you think because of this survey they are going to come up with some magic pill to cure PFS?

We are accomplishing more over at this tiny little site then they ever have. So really, I guess I don't see the point.

For the guys who do feel like contributing to this survey would be helpful, does that mean that they are not fully on board with the TMO protocol? I feel that if the belief over here was 100%, then this survey would be pointless.

I would like to hear all of your thoughts on this.....


Filling out a survey on PH is utterly pointless. That site is extremely toxic, to the point where many of its posters have killed themselves.

It’s not going to help find a pill-based cure. The research that’s currently being done is still in the phase of trying to spell out a disease mechanism - what exactly is going wrong and in what ways. A cure through the FDA approved drug pathway would take decades and the funding is not there to do this. It will not happen.

By filling out their survey, you’re lending legitimacy to propeciahelp. IMO it is bad, and the only reason to visit the site would be to encourage people to leave it.

Mate you still have no libido four years in

Guys kill themselves because of pfs might be sure

I agree the site admin new awor and axo are all cunts though

Nobody shouts about recuverybthere

Zerolibido
11-25-2023, 01:37 AM
Filling out a survey on PH is utterly pointless. That site is extremely toxic, to the point where many of its posters have killed themselves.

It’s not going to help find a pill-based cure. The research that’s currently being done is still in the phase of trying to spell out a disease mechanism - what exactly is going wrong and in what ways. A cure through the FDA approved drug pathway would take decades and the funding is not there to do this. It will not happen.

By filling out their survey, you’re lending legitimacy to propeciahelp. IMO it is bad, and the only reason to visit the site would be to encourage people to leave it.

A cure can happen through CRisps or gene therapy

It will take five Tibetan years maybe even quicker if a rich cunt appears

- - - Updated - - -

If course a pill will never cure it but gene therapy might

- - - Updated - - -

Ducking irangebbastards

Dirty ducking orange bastrds

Want to massacre theme with an An 47 the scrum cunts

Zerolibido
11-25-2023, 01:45 AM
Filling out a survey on PH is utterly pointless. That site is extremely toxic, to the point where many of its posters have killed themselves.

It’s not going to help find a pill-based cure. The research that’s currently being done is still in the phase of trying to spell out a disease mechanism - what exactly is going wrong and in what ways. A cure through the FDA approved drug pathway would take decades and the funding is not there to do this. It will not happen.

By filling out their survey, you’re lending legitimacy to propeciahelp. IMO it is bad, and the only reason to visit the site would be to encourage people to leave it.
four years and still no libido for ducks sake

Maybe it dawns you it's a load of shit?

Why don't you support the ducking research contoured a favour??

Spinal bukbar muscular atrophy is being treated in animal studies with crispr

It's a similar androgen receptor disease