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I’ve had upswings. I’ve had them when I was off protocol too.
These were moments where I basically tried to convince myself PFS isn’t real, just to cope. Not that I was cured, of course.
Ultimately, nothing fundamentally changed for me, especially in the shrinkage part. You might be different.
Hello,Quote:
Originally Posted by Vahn
Like you, I used saw palmetto and was severely affected. I am 6-7 months off saw palmetto PFS from a single topical dose and reading your story and symptoms pretty much says my story.
I got few questions to ask if that is ok.
Have intense gym sessions helped your symptoms? specially ED?
Have you got hard flaccid symptoms?
Have you got any nerve pain (neuropathy on hands and feet)?
Please dont give up!
It started off as hard flaccid yes. Now it’s more often dead, wrinkled and weightless. But it sometimes switches between the two.
Exercising sometimes made it a bit better, sometimes worse. I tried not to analyse it too much.
No noticeable nerve pain. I did have some skin numbness on my arms and neck for quite a while.
How long were you on the protocol? Meaning after the fast.
It's just so sad to hear someone give up, I'm in a bad place too man but I just cant give up, especially after talking to real people who have gotten cured.
I wish you the best brother. It's just really depressing to hear news like this.
I juice feasted in February last year. I was on protocol until around the same date this year.Quote:
Originally Posted by GoldenSun
A lot of people get better, so you do you. I see that you’ve had long periods where you’ve felt a lot better. Hang on to those.
I’m just giving my experience. I have quite a bit of physical changes that just don’t get better, no matter what I do.
This is not typical of the protocol results. It's the exact opposite actually.Quote:
Originally Posted by Vahn
You were doing 100% of the protocol for how long?
My timeline is somewhere in this thread. I implemented it slowly since August 2020, but started counting officially since February 2021, when I feasted and got off all medications. I cycled all supplements and herbs (LEH), did HIIT 2/3 times a week, paleo diet, meditation (and counseling), cold showers every day, sun exposure, red light and IR on the boys, no alcohol, as little xenoestrogens as possible... the works. Was I on 100%? Not completely. I'd say around 90%. I managed nofap to around two weeks at most (no porn was not a problem however). Weight training was OK but never anything like before, when I'd go for like 4/5 days a week. Now I did 2 days. No energy I guess, but forced myself to go regardless.Quote:
Originally Posted by Cdsnuts
The only thing I didn't do was the bathmate. I got two models, followed your advice but both of them hurt me too much, even with just a couple of pumps (shooting pains through my penis), so I decided against it after using it a couple of times a week for a month or three.
I stopped somewhere in February this year.
I know you're gonna say I had to do 100%, but with respect, if 90% for a year doesn't make much difference, I doubt 100% (and pushing through the pain of the bathmate) would.
I'm not like you I suppose. I always admired your positive energy. Even though I'm still here, which I consider quite an achievement. I really tried, but seeing the tissues of my genitals destroyed every day for the past two years, despite doing my best to cure myself, is too much for me.
Because of this, I'm in a terrible spot and this disease is getting the better of me.
Maybe I need more time and consistency, as you so often put it.
Anyway, this is just my experience and I won't bother anyone with it anymore. If I ever do get better, I'll let you guys know for sure.
PS I want to reiterate to anyone reading that you should just do the protocol, as most seem to fare well on it. Don't let my experience drag you down (for which I apologise), but my experience is what it is. I won't censure it.
Quote:
Originally Posted by Vahn
I hope this doesn’t come off as obnoxious, not at all my intent as I want the best for you even though I don’t know you personally at all but feel a sense of closeness given we’re all victims of 5AR inhibitors but, do you have an alternative planned? You did say you stopped the protocol awhile back for a bit, looking at your timeline if you were doing the protocol 90+% it seems like that was about a year if my math serves me correctly? You were also on SSRIs which could be an additional hurdle, maybe the minoxidil pushed you back a little more?
Listen man I’d just hate to see you throw in the towel, you seemed to have been consistent for a time. Maybe you were a few months away from a major breakthrough? I just don’t think modern western medicine has the answers, you’ve experienced that yourself with the experts you’ve seen hardly even acknowledging your condition.
I’ve never been on SSRIs. I was on Wellbutrin, a NDRI, but got off in February 2021, before I feasted.Quote:
Originally Posted by PashaSolid
Maybe a breakthrough was just a few months away, could be. I just saw no use in it anymore after a year of no change.
I have no alternative but will keep a healthy lifestyle. More importantly, I must find hope again, my life depends on it.
Have you tried Prohormones yet?Quote:
Originally Posted by Vahn
For me, nothing really improved my baseline but prohormones.
Cycled in combination with the rest of the protocol you can shift some serious chemistry in your body. If you haven't tried it, I'd highly recommend it.