Several May know me here. I was frequent poster on hackstasis. I had incredible recovery between pfs and Lyme/CFS in 2017/2018. I never made it the whole way but I went from bedridden, couldn’t live sleep do anything without an antidepressant or anti anxiety for 6 full months post fin. I was horrible. But I caught my big break with mycoplasma diagnosis. And I lived coolest recovery ever.
I used a lot of what is preached here with herbs and fasting. But I did a lot more. Coffee enemas, juicing, liver flushing, rife machine, probiotic enemas, ice baths, mag baths, sauna- tons of it , exercise when I was ready and that was funnest part being an athlete again skiing like I was in high school along with the long runs with my dog. Playing basketball again. I’ll never forget how athletic I was. At 29 years old. After having minor issues since 22 (like Lyme) and getting pfs right when I turned 28. It was like being reborn.
I liked CD’s approach diet wise. Fasting and plant based (I ate a lot of fish- I didn’t give up meat but just much less) diet till digestion was right. Digestion gets great? Boom- meat makes a man out of you.. libido came with meat too.
I used RU/progesterone once fatigue was gone- that started libido up then followed with zinc finger approach from gbold. Met my girlfriend in 2018. I had my whole life ahead of me. I woke up with a rock hard woody each morning. My sleep was so deep.
I trialed and errored on my body like crazy on hackstasis. 2017/2018 was magical until late 2018 minor Lyme relapse. It should’ve been a little crack in the story. A tiny set back. I was crazy natural health guy but it wasn’t getting me beyond the relapse. A 25 day water fast in late 2018 did no dent to the Lyme according to organic acids testing after it. I still was not right or close to it. I still had Lyme- I felt it. Of course I believed in some things in modern medicine- 2 antibiotics over 3.5 weeks really helped save my life in 2017.
I’ve been away from PFS community for awhile. I think august was last time I posted on a forum here I mentioned I started working with mold. I had a really tedious up and down period between late 2018 when I relapsed and august 2021 when hackstasis went down. People on forums laughed at me, shit on me for “trying to beat a disease that can’t be beat” and wasting my time.
While in reality I got fucked. One bad thing happened and I figured it out but it was too late. In February 2019, an antibiotic Ceftin killed off e. Coli in my gut. I am speaking of beneficial e. Coli. I had no idea for nearly two years. I tried a lot during that time period and was doing decent for awhile on nutritional balancing. All the 2017/2018 recovery stuff / cdsnuts approach didn’t work. Fasting wasn’t the same. Gut was off, I required nutrients to make my body work. It was tedious but I was battling.
In April 2020, I fell apart. I took care of Lyme co-infection babesia in May and got even worse in June! Gbold helped me out in august with htma pushing chromium and we got me on my feet a bit where I could golf and exercise again through fall. A Few other nutrients helped along with two short fasts. But I wasn’t right. Stomach testing showed stuff off. Like microbiome was completely imbalanced. I tried e. Coli probiotic in November 2020 to have strongest herxheimer reaction I’ve ever had in my entire life. Way stronger than any Lyme herx. This was when I realized e. Coli had been gone in gut for nearly two years from February 2019 antibiotics.
I thought I solved my problem. I was so excited as bad as that herx was. But I used the e. Coli probiotic for two weeks. And the herx wouldn’t stop. This wasn’t Lyme, whatever was in my body would not fully die. I went into my advanced stool testing and found the horrid truth. I had Cyanobacteria growing in my stomach the prior 6-12 months. All because e. Coli was killed off by an antibiotic. E. Coli, in a normal human being, makes it so Cyanobacteria cannot grow in the body.
Cyanobacteria is deadly. But I found a way to kill it. 9 day water fast with mutaflor (e. Coli probiotic). I was a little better afterward for sure. There was no more herx. I did another stool test- zero Cyanobacteria.
The big problem is… Cyanobacteria releases BMAA. Bmaa is biggest lead we have on ALS currently. The Chamorro people of Guam had a 20% rate of this disease ALS-PDC. They got it from their diet. Bmaa was in food they were eating in rapid amounts. It was a slow form of als… would take longer than the normal one. But some people would live in Guam for first half of life, move to another country get ALS 20 years later. So it’s clear… bmaa sticks in body.
A researcher told me…. it can be dormant for years. But once enough gets to a certain part of brain, it’s basically over and person slowly dies 2-6 years average once the disease really hits. ALS victim Roger Faulkner wrote about his ALS and theorized that this is what happened to him. Post antibiotics, he used cypro which kills e. Coli too, he was drinking and swimming out of lake water. And ALS would hit a few years later. Smh I was drinking from a spring too myself. That’s how Cyanobacteria probably got in.
I tried in 2021 and it hadn’t hit yet. I honestly think my big issues were b2 deficiency and mold that occurred from it. B2/b6 deficiencies = mold cuz body can’t process tryptophan. I had ups and downs…. I loved b12 and that can deplete b2 even more I would later learn. Then mold diagnosis really fucked with my brain as I used binders for 4-6 weeks.
I realized in the midst of all of this ozone did something special. It made copper and zinc stronger. Like a lot stronger. My belief, along with talking to researchers, is that bmaa makes copper and zinc basically die. And the current treatment they offer to slow down ALS if bmaa is the culprit is copper zinc and serine (amino acid that competes with bmaa).
But unfortunately, I couldn’t tolerate much ozone. I would later realize it was cuz I was b2 deficient. Which uses iron and puts it where it needs to be. Ozone in b2 deficiency = iron in the brain. Which made things worse. So I was conflicted.
I put everything together in October. The ozone thing. The b2 thing. The mold thing (basically just being b2 deficiency). The BMAA thing (that ozone can defeat, if b2 is used with it). That I was probably dying from bmaa if I don’t figure shit out soon. Cuz I had regressed the prior 2-3 months. But I was FINE. I was capable of beating this. There is no doubt in my mind. Or of at least finding a decent life.
I started using nothing but b2 and molybdenum (cofactor for functional b2). Within a week I had my best day in months. Unfortunately…. I wake up with Covid. And I needed zinc. Which made my brain worse but was putting Covid down. I had mold symptoms going on and used a couple binders humic fulvic acid (shilajit essentially) and took some vitamin A one day. And boom!!!!
Biggest crash of my life next to pfs. Panic attacks etc. After speaking to my nutritionist we theorized it was lead absorbed into system from humic/fulvic and Vit A which can absorb iron and lead specifically when b2 deficient. I tried modified citrus pectin for a few days and it helped a ton.
I stopped the mcp for 24 hours and I’ve been dying the worst death a human being can die ever since. It’s definitely bmaa. It’s definitely early ALS-PDC. Forr instance, copper zinc calcium were helping me at first. Binders mcp and sodium alginate too. Now I have ZERO reaction to them nothing! For first time in years since mid 2017 I’m back in full blown sexual dysfunction. But fuck that. Im dying. Like my brain is something you’d never ever understand it’s so different from Lyme, pfs days. It’s murder.
With Lyme in 2017 when I was severe. It was the same disease for 6 months till I finally got diagnosis and treated it. Yes it was bad. Very bad. But it didn’t progress. This is 100x worse than 6 weeks ago which was 100x worse than 6 weeks before that.
I’m pretty sure it’s over. Everything I worked for, everything I learned. Swimming in ice cold ocean in Boston area in November on 15th day of a water fast. I gave it my all. I proved myself right. I proved CD, English, chi, maxout, gbold and everyone who motivated me right. I was awesome and I truly deep down fell in love with myself when I beat pfs. And that’s most important love a person can have.
I just had to get it out there what happened to me to this community. I’m not looking for help anymore. I’m still trying. I fixed the b2 deficiency and cool I can drink alcohol again, but there’s a big difference between neurodegenerative disease like ALS and Lyme/ pfs. They are different animals. Like my organs work great, my gut works good. It’s just brain. It dies.
I’m letting those out there know in health world first I guess. I don’t know how I’m gonna release this news to most of my friends. A few know I’m bad. But I always came back. Played some of best golf of my life this year while fighting the beginnings of this.
I guess best way to put it is the disease started but was at 5/100 most of ‘21. Then 15/100 with minor set back in august. Then 75/100 when I fell apart in November. Now it’s getting closer and closer to 100.
I loved life so much. Pfs helped me love life after like soooo much. Sure I still had CFS issues when I got Lyme again in late ‘18. But still, I found a way to live and love this world with issues or not. Now? I’m suffering non stop 24/7. I’m shaking writing this. I’m sooooo sad
This isn’t right. Fucking pharma. Not just fin. Antibiotics I’m sure are the cause of so many diseases. Cuz mine didn’t really hit took 2 years later. Such a. Joke.
